Update on Tyler for Tuesday Oct 24
My apologies to Tyler for not moving this up sooner...I'm still in mourning over this whole Mets thing...
Sorry there was no update last night (Monday). I was home with Justin and Keegan and after Mrs Grahams AWESOME Lasanga dinner, we just crashed on the coach and watched TV.
Lori stayed with Tyler last night. He was moved from PICU to the Pedictric "Theatre" Neighborhood late last night. His new room number is 3212. They do not have regular hospital wards here. They have "neighborhoods" that have a theme. Tyler has been in the Literature and Theatre neighborhoods. There arealso sailing and sports neighborhoods for younger kids. They are very nice and quiet.
Today (tuesday) Tyler had physical therapy again and had to sit up and balance himself on the bed (with his legs hanging over) He did great according to the Therapist. Tomorrow she wants to get him to try to slide himself off the bed to a chair.His right chest tube may be removed tomorrow if all goes well. The left will stay until at least friday. That means he will be here at Westchester until the end of this week. Helen Hayes is just around the corner!!!!
YeahAunt Maureen is off to South Africa in 2 more days, so Tyler will be doing everything he can to make her happy when she gets back. That means working hard at rehab so he can give her an awesome birthday present ... maybe some wiggling toes!!
Happy birthday Aunt Maureen... we love you and we hope you have a great trip!
Thats all for now.
Tyler would also like to thank everyone for the prayer service held tonight. Mrs Boffa and Mrs Nutt did a great job. He can't wait to see the video.
Thank you all and Tyler sends a big long distance hug to everyone.
Tyler, Jay and Lori
posted by Webmaster @ 8:37 AM
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1 Comments:
Update on Tyler for thursday and Friday Oct 26/27.
This is a double update today because of the lack of time to send along the info. Tyler had the right chest tube removed on thursday morning and all is well. The left chest tube is now off suction and is using just gravity to drain any remaining fluid. If nothing much comes out in the next 24 hours, the Pulmonary Doc will remove this tube as well. This is a big step towards getting to Helen Hayes!!!. Tyler will stay at Westchester through the weekend and then if all goes well. move to rehab early next week.
At home, Justin had started back at college and hopes to get back to Johnstons very soon. It all depends on how his shoulder feels and how strong his arm will be. He has to use his big strong muscles when he works, so he need to be 100%.
Keegan is doing fine and is eating very well due to Mrs Sheehans crew of Cooks. Every thing has been delicious and I know because I have been home a few nights this week and got to eat the great dinners. Keegan has been a great help here at the house; taking care of the animals and keeping the house in order, without missing much school!
One last thing... there is a new tradition that Tylers vistors must follow when they leave his room. Dan Cocks and Andre have created the "Dance for Tyler" tradition. When you leave and go through the Childrens Hospital lobby, there is a stage that you must dance on so Tyler can see you on the TV. There is a camera on the ceiling over the doors that he can watch you on. The crazier the dance the better. I believe that Justin Murphy and Conor may have participated in this too.
So if you visit... don't forget to dance away.
Thats all for now, remember to keep tyler in your prayers, they ARE working to make him stronger, and we all thank you for your help!
Tyler, Lori, Jay, Justin, Keegan
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